Research News Feed

Clinical Practice Research Datalink

This practice contributes to the Clinical Practice Research Datalink

Information in patient records is important for medical research to develop new treatments and test the safety of medicines. This practice supports medical research by sending some of the information from patient records to the Clinical Practice Research Datalink (CPRD).

CPRD data services from the Medicines and HEalthcare products Regulatory Agency provide anonymised patient data for research to improve patient and public health. No information that can directly identify you is sent to the CPRD. Limited identifiable infomration relating to you (your NHS number, sex, date of birth and residence postcode) is sent directly to NHS England to enable data linkage.

If you do not want anonymised information from your patient record to be used in research you can opt out by speaking to your doctor.

For more information about how your data is used visit www.cprd.com/public 

Published on 15th Oct 2025

Understanding Frontotemporal Dementia & Supporting Carers Along the Journey: the FTDToolkit

Would you be willing to help researchers develop online materials to support carers?

We are recruiting carers currently supporting a family member living with frontotemporal dementia.

We’re developing an online support tool—the FTDToolkit—to help carers manage the symptoms of Frontotemporal Dementia. To make sure the FTDToolkit really works for carers, we’d love to hear from you.

Your experience matters!

Our website: 

https://ftdtoolkit.org/en

Our email:

ftdtoolkit.study@uea.ac.uk

Published on 1st Oct 2025